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教育王國 討論區 特殊教育 Down Sydrome 唐氏綜合症
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Down Sydrome 唐氏綜合症 [複製鏈接]

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1731
1#
發表於 04-10-20 13:06 |顯示全部帖子

Down Sydrome 唐氏綜合症

誠意與大家分享經歷
作為唐氏bb的媽媽

mum to astha

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1731
2#
發表於 04-10-20 18:39 |顯示全部帖子

Re: Down Sydrome 唐氏綜合症

Hi, halusan

My daughter is 12 months old now, she is our first child.
We found out that she has DS after she born.  It was a big shock for us at the beginning but we recovered it in a very short period because my husband and I accept that what she is.  I keep searching  more information on the internet and read many other parent's stories so we know that she will be okay.
I breastfed her until she was 10 months old and everything seems to okay.  Doctor said she is 3-4 months delay with the normal kid.  
Do you want to know more?

mum to Astha

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1731
3#
發表於 04-10-20 22:04 |顯示全部帖子

Re: Down Sydrome 唐氏綜合症

Dr.T
Thnaks for the information.
Yes, I do contact the social worker from there. And she is very nice & helpful.

mum to Astha

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1731
4#
發表於 04-10-21 00:04 |顯示全部帖子

Re: Down Sydrome 唐氏綜合症

thanks so much!

My daughter is waiting to attend the early intervention centre. Doctor said she doesn't needs to see SP at the moment because she still young, thanks again.

mum to Astha
btw, how old is yr child (boy/girl)?

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1731
5#
發表於 04-10-21 16:14 |顯示全部帖子

Re: Down Sydrome 唐氏綜合症

Hi halusan

Where are you working at? and how much will you charge for a session?  Usually when these children should start the speech therapy? Astha is attending the phyciotherpy & OT. Please advice.
I want my daughter go into "Watchdog" ? Because they can provide music therapy too.
Tell me more information about your talk pls.

Thanks
mum to Astha  :

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1731
6#
發表於 04-10-26 16:33 |顯示全部帖子

Re: Down Sydrome 唐氏綜合症

多謝你既pm回覆.
我係百份佰"香港人", 但我老公就係"尼泊爾"人, 我媽媽同我地一起住幫我湊女, 咁所以我地係屋企都會用雙語溝通.
想知道"雙語溝通"既環境下會否影響到小朋友學講說話的進展? 唐氏小朋友因"肌肉張力低"既問題對佢地學講說話有幾大的影響?
如要参加你的講座, 應怎樣報名?
mumtoastha  

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1731
7#
發表於 04-10-26 16:45 |顯示全部帖子

Re: Down Sydrome 唐氏綜合症

halusan
可否提供音樂治療課程的資料, 要有什麼資格才可報讀, 一般人可報讀嗎?
thanks,
mumtoastha

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1731
8#
發表於 04-10-28 11:25 |顯示全部帖子

Re: Down Sydrome 唐氏綜合症

to halusan
thanks for the advice. we will try to aviod that happen. i feel more relief now.
music therapy - how about the one held at HKU Space?
mumtoastha

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1731
9#
發表於 04-10-29 09:25 |顯示全部帖子

Re: Down Sydrome 唐氏綜合症

yes, halusan

I get some information from Pang's that he is running a course at HKU SPACE. Are you also studing at there?

mumtoastha
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