Down Syndrome - Not disable, differently abled..... (Part 2)

catca

regina
終於係sina開到戶啦！之前試過好多次都開唔到，原來用firefox係唔得架，要用IE！
但係stupid既我仲係留唔到言，請問什麼是驗證密碼呢？

catca

Bang Bang and her daughter will join us too. Yeah!
Are Kitlok and chelsama planning to join?

catca

chelsea ma, thanks for joining. I don't think I'm prepared to serve youdinner at home, either. My helper is off on Sundays so I'll be busyenough to take care of 3 kids. haha.

How about Kitlok? Bang says he lives in Tin Shui Wai too, hope you canjoin us, I'd really love to meet the two princes personally.

原文章由 chelsea.mama 於 07-9-6 08:05 硐表
1大1小 ,  但係唔好意思 , 因為晚上有家庭飯局 ,  所以6:00pm要走 .

catca

Dear all
Please meet at Hang Hau MTR station (Exit A) Taxi stationat 3pm onSunday. Some of you'll have to take taxi to my home I'mafraid, cause Ican't take all of you in my car.
As for Kitlok, youcan drive directly to the village that I live, butstill I'll have tolead you the way to my home. Pls pm me your email,I'll send you theaddress and the map later tonight.

P.S. Please check pm for my cell phone no.

原文章由 kitlok 於 07-9-6 19:54 硐表
catca:

我吔一家大細揸車到,咁我吔去边到等呀?

[ 本文章最後由 catca 於 07-9-7 09:59 編輯 ]

catca

Bang Bang and Matthew ma changed their minds, they'll join us next time.

catca

regina
can you confirm if your husband is coming? Maybe you and chelsea ma can all squeeze into my car.... haha

catca

Thank you all for coming today. It's great to know you. Hope we'll getmore chance to gather together and share. It's wonderful to know thatyou're not alone.

catca

Sorry, I go to church Sunday morning.

原文章由 reginang 於 07-9-9 23:10 硐表
catca
打攪晒丫, 你家既環境好舒服, 空氣好清新 ::" />
如果你地吾怕我煩, 我最鐘意攪野架 ......
我覺得最好定期(1-2個月)安排一次活動

7/10 行山(山頂) ~~~ 有冇興趣呀
10am 在山頂廣場集合(約2hrs 行完 ...

catca

sat afternoon (after 12pm) is fine with me. morning jasmine has piano class....
sun afternoon available after 1pm.

glad to know that hanhan is getting better.

candy & family:
have u all recovered from the sickness yet? miss u!

原文章由 reginang 於 07-9-11 19:02 硐表
hanhan ma
你禮拜天要上教堂嗎???
如果安排SAT 早上會吾會好些??
不過我知CANDY 要返工, SO 有時D 活動要安排SUN 嘞 :

catca

Medela twin pumps, electric ones.

原文章由 hanhanmama 於 07-9-18 10:17 硐表
catca,

想問下你用邊個牌子奶泵,electric or manual,我有朋友就快生,佢打算餵人奶.

thanks.

[ 本文章最後由 catca 於 07-9-19 02:03 編輯 ]

catca

agree. 肥田而家2歲幾仲係唔係幾肯自己刷牙架！

原文章由 reginang 於 07-9-19 15:32 硐表
呢個我真係吾知, 我諗就算係normal kid, 都會有早遲, 好睇小朋友自己既接受程度

catca

kitlok
hei hei 幾時開始識眼仔追住d moving objects 睇架？janet 對moving objects毫無反應呢！

catca

原來要架？我唔知添....眼科中心係邊度架？唔駛醫生介紹信咩？

原文章由 kitlok 於 07-9-23 11:13 硐表
catca:
janet 睇左眼科檢查未(喺眼科中心自己約期)?
heihei個半月已睇左,黎緊4∕10再睇!

catca

我諗我明點解會有對唔住3b既感覺.....
又係你叫佢黎既，佢黎到你又嫌佢蠢，叫佢去死......
作為母親既，要決定丟棄自己既仔女都會覺得扎心吧....... 這並非單一盲目既宗教考慮啊.........

原文章由 lovematthew 於 07-9-22 15:36 硐表
如果bad news而唔要3b, 又好似對3b唔住....

[ 本文章最後由 catca 於 07-9-25 08:57 編輯 ]

catca

謝謝大家，Janet出院時問過姑娘，佢話淨係check左耳仔無check眼.......唐氏協會社工幫我轉左去大埔那打素down's clinic睇，下個月5 號有期，到時會再問醫生啦，thanks alot!

P.S. 我老公都有先天性白內障.....

原文章由 hanhanmama 於 07-9-24 12:26 硐表
catca,

我個case: hanhan在私家醫院出世，出世後不久我自己就搵左個私人兒童眼科醫生檢查hanhan的眼睛(因知道唐寶寶容易有先天性白內障)，轉介左去QM初生嬰兒科後，該處的醫生並冇寫介紹信俾hanhan去眼科，要等到大口環兒童 ...

catca

只係想用個極端既字眼來說明"對不起bb"的感覺，並無惡意，請眾人別介意....

就算生了個"正常"小朋友也不代表一切就在掌握之內......他也可能是個自閉兒或有其他學習障礙，也可以因意外變成殘廢而無法自力更生，也可能患上血癌而早早離世，他也不一定能作出合情合理的決定：自殺、犯罪、貪污 ........有d野唔諗得太遠，只知道活在當下...


當然，如果明知事情一定不會好到哪裡，絕對有權選擇不接受.....只是normal的也有normal的問題啊！

無意在這裡辯論，a coin has two sides，睇你點睇...... 不過，遺傳科姑娘話，我地再生唐bb的機會係1%，無咁橋瓜......

原文章由 reginang 於 07-9-25 09:53 硐表
"蠢"有耐冇用過呢個字.......
蠢....... 亦不是一個問題, even normal child 都有反應快同慢/勤力同懶/孝順同吾孝順/盡責和不盡責..... 唐氏仲有好多問題, 健康身體機能早衰問題, 社會容納, 自力更生, 有冇足夠能力 ...

catca

預埋我好嗎？(好厚面皮啊！):tongue:

原文章由 reginang 於 07-9-26 22:51 硐表
hanhan ma
你下星期有冇空陪我去stanley 嘆早餐 ~~~ : :
我想去睇下d 衫仔返左新貨未呀  

catca

好彩只係玫瑰疹，擔心死！你自己都要take care 呀！

原文章由 lovematthew 於 07-9-27 14:00 硐表
Dear Regina / Catca,
Agree both of you, thanks. Yes, a coin has two sides.
早排matthew發高燒2星期, 身上出滿紅疹, clinic transfer我地去hospital, 去到住左2日, 抽血報告話血小板及白血球偏低, 好擔心會係can ...

catca

Wednesday ok, but i can't be there so early..... have to take thekidsto school.... guess i can arrive stanley only after 10:15 (ifidrive)......but then it'll be a brunch instead of a breakfast......... actually i want to visit the new library there

regina, remember to bring the VCD this time.... haha.:
hanhanma, i borrowed the book 'Fine Motor Skills in Children with DownSyndrome' from the public library, it is very useful. But I couldn'tfine the other one on Gross motor skills there, do u think u can lendit to me?

原文章由 hanhanmama 於 07-9-27 18:54 硐表
下星期二，三，四早上o.k.我約9am可抵達赤柱。catca,歡迎你來。其他mama呢?

[ 本文章最後由 catca 於 07-9-28 23:36 編輯 ]

catca

regina, 請左工人喇 ？都係有個人幫下手好d既.....我而家2個工人(包括我自己)對三個細路都幾想死,最好1個 mark 1個.....所以有時都要請part-time 工人(老公)幫幫手....哈哈

原文章由 reginang 於 07-9-29 10:55 硐表
candy
祝matthew 早日康復
要吾要多個小朋友呢, 要好好同老公及家人相量, 因為除了自己, 還要看其他人能否配合, 真的要很多支持, 經濟時間固然不可少......
我自己都係要再等多一排先諗, 現在既我好像行屍走肉 ...