治療自閉症

Elikinma

hystericland:
當時問Dr Ku小兒經驗尿後有中水銀和鉛毒,
之前有做過chelation排毒,想知有無健康食品助排毒(針對lead & mercury)。

我們在網上找到洋葱素、螺旋藻是幫助排水銀和鉛,也可保護liver受水銀侵害。

成效如何?很難講。因為小兒有一起吃其他保健食品,他的進步應該是各有功勞。

吃洋+螺后,小兒常出很臭的汗,氣味似尿味,又似蝦條味。問Dr Ku這是否排毒的情況,他笑了笑,說應該不是吧！

Elikinma

june1997:

Melatonin(褪黑激素)是幫助時差或睡眠問題,並不是安眠藥。起初我到manning/ 屈臣氏買,佢地都依瓶上label說不適合小孩吃,之後我再三問西医及little giant,均回應是沒問題。

5 HTP (5-Hydroxytryptophan)多是用作Mood Disorder,Sleep Aid等。西医說有助calm down情緒。這不是藥,是supplement。由於小兒的睡眠質素已大大改善,小兒已不用吃5 HTP。

Zinc Drink其實是配合其他supplements的functions 而加的。我曾經試過分別停Melatonin, 5 HTP 和Zinc, 發覺無吃M和Z時,小兒很難入睡或睡很少。

在Dr KU出版的新書中也有提及睡眠問題,蕃茄等食物也含"褪黑激素",睡前吃半个也助睡眠(當然直接吃Melatonin是更有效,視乎孩子的睡眠問題有几嚴重)。

Elikinma

Hystericland:

喺呀!返S位的確可以幫到阿仔!(尤其是自理、常規)當然家人也要努力教導和檢討加減私人个別訓練。媽媽的努力是不會白費的,日後會有更多高興的Superise呢!

Anyway, 請問你晚上也讓囝囝食"乙",他能早睡嗎?

Owl_2046:
其實Dr.KU的"螺"並不臭! (我只是加5-10ml水開,用針筒餵食)

Elikinma

因要上班,又要照顧兩個孩子, 所以已很少上kingdom發言。

我於2009年2月開始讓小兒吃"乙"+"蘋", 間中也會加吃"黑加倫子提純", 一直維持至今, 小兒快5歲了。

我只見他在不斷進步, 尤其在今年, 他在社交、自理、智能和情緒方面均有較大改善, 但言語仍是較弱。

除了補充"乙"+"蘋", 父母仍要努力給予孩子適當的訓練, 這是肯定的有效方法。"乙"+"蘋"是否有效地影響孩子, 父母可試停吃二星期或較長時段, 看孩子有何不同反應。我試停了一星期, 明顯發覺兒子的感統失調較嚴重,例如会不停尋求某種刺激。

"乙"是由植物提煉的, 而且味道超酸, 要進食並不易, 我自己本來也想變得記憶好D,也試吃過, 但真喺酸到想嘔......我自己放棄了。

幸好兒子喜歡酸味的刺激感, 所以他接受只以水冲服(20ml)。

正如博士所指, 我也同意孩子變得聰明左, 但並不是三天便會說話。幾時可以停吃?他說直至你覺得佢太聰明、太煩了......

Elikinma

hi besmart,

Yes. I buy from Dr KU.

hope your son will get improvement soon after taking these supplements.

Elikinma

pattsui11@yahoo:

以我兒為例(現為5歲A仔), 食物敏感的確對他有明顯的影响性。

起初試Biomedical Treatment, 知道要GFCF, 后來正式驗IgG, 兒子對很多食物也有敏感,尤其以奶類、蛋、牛肉、豬肉、蜜糖、杏仁、米、麥、檸、橙等等反應較大。自此我努力看各種參考書,請教Dr KU、政府及私人營養師和医生的意見, 雖然各有論點, 但我仍盡力為兒子進行Diet by Rotation, 避免吃highly reactive 的食物.....想不到兒子的進步比昔日只吃"乙+蘋"和做3T來得更顯著。效果真叫人高興。(例如他以前吃了奶類飲品, 他會尖叫尖叫, 感統失調e.g.會狂跳躍撞sofa, 半夜起床至天亮,不停亂扔東西等,而且此類情緒的敏感反應未必是即時性,可能在幾小時后或數天后才發作, 嚴重的要2、3個星期才能平伏下來。)

我同意有很多種自閉症的治療方法, 有時可要互相配合才有更佳效果。

btw 小兒吃"乙+蘋"和做3T差不多2年了。現開始學游泳和Music Therapy, 他也十分喜歡。

Elikinma

pattsui11@yahoo:

Yes. Rice is allergy to my son. In order to implement GFCF diet, my son only drank rice milk or had congee with pork in his babyhood and I think he had over taken rice and pork at that period while his immune system reacted abnormally against the rice and pork. Besides, his diet was extremely imbalance and singularize.

After consulting the nutritionist, rotation of diet had been applied. ( rotate diets with less allergy food in order to diversify and have a balance diet. Also, digestion system (different enzyme)takes time to treat the food if you take the same food repeatly say four meals a day and carry on for years, you body cannot produce the same enzyme to process the same food within short time repeatly.

Elikinma

Great! I will surely buy the book.

No, rice milk was not ok for my son but I did not know he was allergy with rice as I never tried the blood test (for food allergy) at that time. Since the DAN doctor recommended GFCF diet, rice milk or soy milk is the alternative food for little kids and that's why I gave rice milk to my son. Two years later, after the blood test, I knew my son was allergy with rice so I changed to feed him corn, wheat, rice and other substitutes by rotation and aviod most reactive allergy food.  

I remember he was very difficult to take care at his babyhood. I was so frustrated about his screamings, unreasonable cryings, serious stimulation seeking and hot temper.

His is getting much better now and he is less allergy with rice which reflected from his blood test recently so I normally give him rice at lunch and dinner.

Elikinma

Hi Hystericland:

非常欣賞你對兒子的細心照顧並為他tailor made supplements 的組合。在你的悉心照顧下, 你兒子當然會感受到你對他的愛並會努力向前進步。

其實我也為小兒調較了supplements的組合, 看去和你的大至相似並戒敏感食物, 小兒也進步不少。

惟某些劑量有較大差異, 因為我沒有理科底也不懂葯劑, 想請教你以下的劑量是supplements上的標簽指引份量? 我兒吃的是Super Nu Thera, 含多種維他命的powder, 劑量如下:

a.        B-6 Pyidoxine Hydronchioride 100mg x 3 /  ==>B6 Pyidoxine HCL 250mg
b.        B-6 Pyridoxal 5 Phosphate 50mg /==>to moderate the possibility of hyperactivity
c.        Zinc 50mg /==>5mg
d.        DMG 250mg/ ==>for speech but may arouse hyperactivity
e.        Magnesium 400mg (from Magnesium Citrate, Magnesium Glycinate and Magnesium Malate)/ ==> 750mcg
f.        DHA gems (DHA 500mg, EPA 100mg)==> EPA 500mg
g. B-12 (Cyanocobalamin, Methylcobalamin and Dibencozide) 5000mg(Liquid)
==>5mcg
f. Folic Acid 800mg (liquid)==>200mcg
另加以上乙醯肉鹼+丁酸鹽各 2g
==>乙醯肉鹼+apple pectin+ 黑加倫子提純+probiotic powder

Elikinma

wmlmama:

請細心想想, 有什麼因素使孩子近幾個月卻停滯不前? e.g.健康問題, 訓練/活動是否能配合他的發展?

如果經濟許可, 同時請讓孩子上小組/個別訓練(e.g.Speech Therapy, OT), 這對孩子很有幫助。平日在家也要做訓練, 有空要帶孩子外出, 好讓他與社區融合, 有時會刺激到很多新思維。(當然這不是容易的事, 有時要做好心理準備, 孩子可會扭計或遇到別人不善的目光)

針灸方面, 我兒曾試了差不多兩年(每星期2-3次), 起初會有較大幫助, 後期因種種因素我停了。

我兒今年畢業,九月要升小學。 回想最初到S位返學, 小兒在校很快便很出名(佢一定係頭幾個裏最頑皮和難搞, 如做評估, 他必屬中度或更嚴重), 當時我好担心。剛做了評估, 結果是輕度, 我最後决定仍是選讀特殊小學, 放棄主流。

彼此努力呀!

Elikinma