I suspect that my child has 癲癇症

mrsphcheung

My son got coma / convulsion last night and stayed in the hospital for observation.  He had convulsion for two times at the age of 2 due to high fever.  He was very healthy this time before he got the coma.  I am extremely anxious that he may suffer from epilepsy.  He is so young, just 6.  It is difficult to handle autism and epilesy at the same time.  It seems that I am holding two bombs....     

AGNESNG

Hi mrsphcheung,

醫生點講呀? 唔一定係epilepsy. 會唔會係冷親"發冷"呀?
我自己都試過一次熟睡發冷, 連續一晚兩次, 博命鎮, 連續幾秒.

思佳媽咪

Dear mrsphcheung,

癲癇在自閉/自閉傾向的孩子來說的確很普遍，尤其是青春期的發病率更高。這麼多年來我一直有這方面的憂慮，但到底還是免不了。醫生的診斷理據，是一次發病不會當是癲癇症，也無須長期食藥，但有了第二次便多數要開始食藥了。你不要太擔心，這不是絕症，就算證實了也不過是長期食藥吧了，聽說現在的藥副作用較少。而且你兒子才六歲，食藥一段時間不番發便會減藥或停藥的。他也可能是只此一次呢！

AGNESNG

思佳媽咪 ,

好嗎? 囝囝現在怎樣呀?  醫生有沒有提議做腦電波等等事情呀?

暑假時我發覺阿仔比我倆罵的時候, 會緊握拳頭震. 到去見精神科覆診我就同醫生講, 佢幫我派期照腦電波, 結果出o左話無羊癇. 不過我都會注意多o左佢行為. 始終A仔發病率比常人高!

AGNESNG

gigi2

Mrsphcheung,

Wish your son all the best and recover very soon! Don't guess and consult your doctor directly.

思佳媽咪

AGNESNG,

我阿仔上月中在政府醫院照了腦電波，姑娘說如果報告屬不正常，便會很快通知，否則就等覆診才跟進。但現在仍無通知，即是正常啦。不過，我問過私家醫生，腦電波正常與否並非關鍵所在，因大部分結果都是正常的，除非病人屬經常性發作，腦電波才會清楚顯示。但只要有多過一次的發作，便無需理會腦電波的結果，都要開始食藥控制。否則，便要承擔隨時發作的風險了。

wewangwang

mrsphcheung,

不要太擔心,high functioning應該無咁易中.Best wishes.

希望我們的仔仔女女都平平安安

kawai

I feel so sad to hear what has happened on your son.  I think he will be fine if he had the same symptoms due to high fever when he was 2.  It is common to have convulsion when suffering from high fever.  

Anyway, hope your son gets well soon.  

  

Siu_Ming

mrsphcheung,

We understand how you feel and do share your worry.  All the best to your son and hope he get well soon.

God be with you and your family!

sjmama & Siu_Ming

mrsphcheung

思佳媽咪, AGNESNG, Gigi2,siu_ming, sjmama, wewangwang and kawai,
多謝各位關心。我比呀仔搞到瘋咗。
呀仔那日的健康全無問題，佢讀緊書時突然成個人停下來，跟住從櫈仔跌落地下，好彩我在現塲，我即刻抱起佢到牀上，佢眼睛瞳孔放大，但無手揸拳頭，無口吐白沬，祗是不清醒，我叫他和拍他，大約十五秒他便甦醒過來。他說自已也不知道剛才發生的事，祗說十分累。我見形勢不妙，便送他到医院。医院把他的情况當非常緊急處理，医生建議留院觀察，做了頭蓋骨Ｘ光、血液測試、又排期做腦電波EEG測試。腦科医生告訴我根據臨牀經驗，呀仔不屬於抽筋，似似地頭暈或者休克，有些人都會有。 由於呀仔兩歲時發高燒抽過兩次筋，佢一早已經做過EEG，結果是正常。我還未知佢有發展障礙時已經非常擔心他患epilepsy。今次我真的十分擔心，呀仔的發展障礙問題而家好似搞得有小小成績，但突然又有健康問題………。我呀仔真是超級難揍，都唔知幾時先至長大。希望他以後沒有同樣的情況發生。

AGNESNG

思佳媽咪,

我都覺得你講得o岩. 所以報告話無事當然安心少少. 但我覺得唔可以以一個report就當終生括免. 仲要一路睇住佢o既成長......青春期(關鍵期).....總言之我可以睇到幾耐就幾耐..

加油 努力

AGNESNG

AGNESNG

Hi mrsphcheung,

你o既擔心及不安, 我o地呢度o既爹o地媽咪係完全感受到,如果一個腦科醫生同你講唔似epilepsy. 這已是一個好消息啦! 佢見過無數個案,而且又有足夠臨床經驗.唔信佢仲信得邊個呀, right?

無論以何, 囝囝有你倆照顧, 一定過得很好很好.
我衷心希望你好似你自己幅大頭相咁樣 "永遠開心快樂, 心裡有陽光"

AGNESNG

sjmama

Dear Mrs Cheung,

你的孩子休克的情況我自小就有, 自兩歲多起, 平均每年一次,每次也是休克十幾秒, 有時候可以估計到起因, 有時候完全不知為何, 我也做過各種各樣檢查, 醫生們也曾以為是心臟病, 癲癇症, 甚至糖尿病......; 但是各種檢查的結果都是正常, 找不到原因. 曾有一位內地的醫生跟我說過有些孩子會有這種情況, 但成年後就沒事(當時我十多歲), 果然25歲後就再也沒有這個情況出現(touch wood!)

你的孩子才出現一次這個情況, 不必太擔心!

我的經驗是:如果能找到原因最好, 若找不到原因, 就要教他小心防犯, 例如我自覺得有幾次是快跑後引起, 就跟學校說了免了我參與跑步運動(但我做其他運動是可以的); 有時估計可能因為低血糖引起, 那我就一定要吃早餐, 避免肚子太餓; 還有剛剛睡醒不要立刻下床, 坐一會兒, 定一定神才下床...

Justin2002

Hi mrsphcheung,

Glad to hear that your son's situation is not as bad as you imagined.  Stay calm and healthy and take good care of yourself too!

Hope that we all have good health and spirit in the year 2007!

Justin2002

mrsphcheung

Sjmama,
Thank you very much for your comfort and encouragement.  I really hope that my son's situation is 'once-and-for-all' --- no more.  To bring up an autistic boy is not easy.  If the child has health problem, it will be much more difficult.

Agnes,
I will do my best to be 'happy' though it is not easy.

Justin2002,
Thank you for your comfort.  I will be alert for his situation and be positive.


WISH EVERYBODY GOOD HEALTH AND GOOD LUCK IN 2007.

mrsphcheung

Stellacl,
謝謝.
點解阿仔要做腦電波EEG測試?

stellacl 寫道:
mrsphcheung

阿仔去年都入過醫院, 都做過腦電波EEG測試

mrsphcheung

stellacl,
我明白了。
一些醫學的文章說A仔個腦會可能有一些損傷，因而會比較正常的孩子更容易有癲癇情況，這是我最擔心的地方。我會盡量令他無禁疲倦，令他的健康狀況好些，盡量防止再有事發生。

Dommom

Mrs Cheung,

I recall my A son also had similar "black out" when he had more severe A features.  He would stop whatever he was doing and became "frozen" for about 15 seconds, not reacting to us touching and pushing him.  Dr. Ko also suspected elipsy then.  It disappeared totally now.  Don't worry so much.  BTW do you think it has something to do with low blood sugar?

Anyhow, best of luck and take care!!!